LGMD CAB Completes Data Collection Phase of Cardiac Care Research

The LGMD CAB is pleased to announce the successful completion of the data collection phase of our cardiac care research for people living with LGMD.

This marks an important milestone in our efforts to better understand the cardiac care experiences and needs of the LGMD community. The project now moves into its next phase, where our university data analysis team will begin reviewing the data and shaping the next stage of this important work.

We are deeply grateful for the exceptional response and support from the community. The willingness of so many individuals to take part highlights the strength of the LGMD community and the shared commitment to advancing knowledge, improving care, and helping shape a better future for people living with LGMD.