{"id":25,"date":"2025-10-09T20:44:15","date_gmt":"2025-10-09T20:44:15","guid":{"rendered":"https:\/\/lgmdcab.org\/?page_id=25"},"modified":"2026-09-18T13:55:42","modified_gmt":"2026-09-18T13:55:42","slug":"news-insights","status":"publish","type":"page","link":"https:\/\/lgmdcab.org\/index.php\/news-insights\/","title":{"rendered":"News &amp; Insights"},"content":{"rendered":"<div id=\"tdi_1\" class=\"tdc-zone\"><div class=\"tdc_zone tdi_2  wpb_row td-pb-row\"  >\n<style scoped>\n\/* custom css - generated by TagDiv Composer *\/\n\n\/* custom css - generated by TagDiv Composer *\/\n.tdi_2{\r\n                    min-height: 0;\r\n                }\n<\/style><div id=\"tdi_3\" class=\"tdc-row\"><div class=\"vc_row tdi_4  wpb_row td-pb-row\" >\n<style scoped>\n\/* custom css - generated by TagDiv Composer *\/\n\n\/* custom css - generated by TagDiv Composer *\/\n.tdi_4,\r\n                .tdi_4 .tdc-columns{\r\n                    min-height: 0;\r\n                }.tdi_4,\r\n\t\t\t\t.tdi_4 .tdc-columns{\r\n\t\t\t\t    display: block;\r\n\t\t\t\t}.tdi_4 .tdc-columns{\r\n\t\t\t\t    width: 100%;\r\n\t\t\t\t}.tdi_4:before,\r\n\t\t\t\t.tdi_4:after{\r\n\t\t\t\t    display: table;\r\n\t\t\t\t}\n<\/style><div class=\"vc_column tdi_6  wpb_column vc_column_container tdc-column td-pb-span12\">\n<style scoped>\n\/* custom css - generated by TagDiv Composer *\/\n\n\/* custom css - generated by TagDiv Composer *\/\n.tdi_6{\r\n                    vertical-align: baseline;\r\n                }.tdi_6 > .wpb_wrapper,\r\n\t\t\t\t.tdi_6 > .wpb_wrapper > .tdc-elements{\r\n\t\t\t\t    display: block;\r\n\t\t\t\t}.tdi_6 > .wpb_wrapper > .tdc-elements{\r\n\t\t\t\t    width: 100%;\r\n\t\t\t\t}.tdi_6 > .wpb_wrapper > .vc_row_inner{\r\n\t\t\t\t    width: auto;\r\n\t\t\t\t}.tdi_6 > .wpb_wrapper{\r\n\t\t\t\t    width: auto;\r\n\t\t\t\t    height: auto;\r\n\t\t\t\t}\n<\/style><div class=\"wpb_wrapper\" ><div class=\"td_block_wrap td_flex_block_1 tdi_7 td-pb-border-top td_block_template_2 td_flex_block\"  data-td-block-uid=\"tdi_7\" >\n<style>\n\/* custom css - generated by TagDiv Composer *\/\n.tdi_7 .td-image-wrap{\r\n\t\t\t\t\tpadding-bottom: 75%;\r\n\t\t\t\t}.tdi_7 .entry-thumb{\r\n\t\t\t\t\tbackground-position: center 50%;\r\n\t\t\t\t}.tdi_7 .td-image-container{\r\n\t\t\t\t \tflex: 0 0 50%;\r\n\t\t\t\t \twidth: 50%;\r\n\t\t\t    \r\n                \tdisplay: block; order: 0;\r\n                \r\n\t\t\t\t\tmargin-left: auto;\r\n                    margin-right: auto;\r\n\t\t\t\t}.ie10 .tdi_7 .td-image-container,\r\n\t\t\t\t.ie11 .tdi_7 .td-image-container{\r\n\t\t\t\t \tflex: 0 0 auto;\r\n\t\t\t    }.tdi_7 .td-module-container{\r\n\t\t\t\t\tflex-direction: row;\r\n\t\t\t\t\r\n\t\t\t\t    border-color: #eaeaea !important;\r\n\t\t\t\t\r\n\t\t\t\t    box-shadow:  0px 0px 30px 0px #b0b3b2;\r\n\t\t\t\t}.ie10 .tdi_7 .td-module-meta-info,\r\n\t\t\t\t.ie11 .tdi_7 .td-module-meta-info{\r\n\t\t\t\t \tflex: 1;\r\n\t\t\t    }body .tdi_7 .td-favorite{\r\n                    font-size: 36px;\r\n                \r\n                    box-shadow:  1px 1px 4px 0px rgba(0, 0, 0, 0.2);\r\n                }.tdi_7 .td-module-meta-info{\r\n\t\t\t\t\tpadding: 90px 79px 20px 70px;\r\n\t\t\t\t\r\n\t\t\t\t\tborder-color: #eaeaea;\r\n\t\t\t\t}.tdi_7 .td_module_wrap{\r\n\t\t\t\t\twidth: 100%;\r\n\t\t\t\t\tfloat: left;\r\n\t\t\t\t\r\n\t\t\t\t\tpadding-left: 20px;\r\n\t\t\t\t\tpadding-right: 20px;\r\n\t\t\t\t\r\n\t\t\t\t\tpadding-bottom: 18px;\r\n\t\t\t\t\tmargin-bottom: 18px;\r\n\t\t\t\t}.rtl .tdi_7 .td_module_wrap{\r\n\t\t\t\t\tfloat: right;\r\n\t\t\t\t}.tdi_7 .td_block_inner{\r\n\t\t\t\t\tmargin-left: -20px;\r\n\t\t\t\t\tmargin-right: -20px;\r\n\t\t\t\t}.tdi_7 .td-module-container:before{\r\n\t\t\t\t\tbottom: -18px;\r\n\t\t\t\t\r\n\t\t\t\t\tborder-color: #eaeaea;\r\n\t\t\t\t}.tdi_7 .td-post-vid-time{\r\n\t\t\t\t\tdisplay: block;\r\n\t\t\t\t}.tdi_7 .td-post-category:not(.td-post-extra-category){\r\n\t\t\t\t\tdisplay: none;\r\n\t\t\t\t}.tdi_7 .td-author-photo .avatar{\r\n\t\t\t\t    width: 20px;\r\n\t\t\t\t    height: 20px;\r\n\t\t\t\t\r\n\t\t\t\t    margin-right: 6px;\r\n\t\t\t\t\r\n\t\t\t\t    border-radius: 50%;\r\n\t\t\t\t}.tdi_7 .td-excerpt{\r\n\t\t\t\t\tdisplay: block;\r\n\t\t\t\t\r\n\t\t\t\t\tcolumn-count: 1;\r\n\t\t\t\t\r\n\t\t\t\t\tcolumn-gap: 48px;\r\n\t\t\t\t\r\n\t\t\t\t\tfont-family:EB Garamond !important;font-size:16px !important;line-height:21px !important;\r\n\t\t\t\t}.tdi_7 .td-audio-player{\r\n\t\t\t\t\topacity: 1;\r\n\t\t\t\t\tvisibility: visible;\r\n\t\t\t\t\theight: auto;\r\n\t\t\t\t\r\n\t\t\t\t\tfont-size: 13px;\r\n\t\t\t\t}.tdi_7 .td-read-more{\r\n\t\t\t\t\tdisplay: block;\r\n\t\t\t\t}.tdi_7 .td-author-date{\r\n\t\t\t\t\tdisplay: inline;\r\n\t\t\t\t}.tdi_7 .td-post-author-name{\r\n\t\t\t\t\tdisplay: inline-block;\r\n\t\t\t\t}.tdi_7 .td-post-date,\r\n\t\t\t\t.tdi_7 .td-post-author-name span{\r\n\t\t\t\t\tdisplay: none;\r\n\t\t\t\t}.tdi_7 .entry-review-stars{\r\n\t\t\t\t\tdisplay: inline-block;\r\n\t\t\t\t}.tdi_7 .td-icon-star,\r\n                .tdi_7 .td-icon-star-empty,\r\n                .tdi_7 .td-icon-star-half{\r\n\t\t\t\t\tfont-size: 15px;\r\n\t\t\t\t}.tdi_7 .td-module-comments{\r\n\t\t\t\t\tdisplay: none;\r\n\t\t\t\t}.tdi_7 .td_module_wrap:nth-last-child(1){\r\n\t\t\t\t\tmargin-bottom: 0;\r\n\t\t\t\t\tpadding-bottom: 0;\r\n\t\t\t\t}.tdi_7 .td_module_wrap:nth-last-child(1) .td-module-container:before{\r\n\t\t\t\t\tdisplay: none;\r\n\t\t\t\t}.tdi_7 .td-post-category{\r\n\t\t\t\t\tbackground-color: #53575a;\r\n\t\t\t\t}.tdi_7 .td-module-title a{\r\n                    box-shadow: inset 0 0 0 0 #000;\r\n                }.tdi_7 .td-module-meta-info,\r\n\t\t\t\t.tdi_7 .td-next-prev-wrap{\r\n\t\t\t\t\ttext-align: center;\r\n\t\t\t\t}.tdi_7 .td-category-pos-above .td-post-category{\r\n\t\t\t\t    align-self: center !important;\r\n\t\t\t\t}.tdi_7 .td-category-pos-image .td-post-category:not(.td-post-extra-category){\r\n\t\t\t\t\tleft: 50%;\r\n\t\t\t\t\tright: auto;\r\n\t\t\t\t\ttransform: translateX(-50%);\r\n\t\t\t\t\t-webkit-transform: translateX(-50%);\r\n\t\t\t\t}.tdi_7.td-h-effect-up-shadow .td_module_wrap:hover .td-category-pos-image .td-post-category:not(.td-post-extra-category){\r\n\t\t\t\t    transform: translate(-50%, -2px);\r\n\t\t\t\t\t-webkit-transform: translate(-50%, -2px);\r\n\t\t\t\t}.tdi_7 .td-read-more a{\r\n\t\t\t\t\tbackground-color: #53575a !important;\r\n\t\t\t\t\r\n\t\t\t\t\tfont-family:EB Garamond !important;font-weight:600 !important;\r\n\t\t\t\t}.tdi_7 .entry-title{\r\n\t\t\t\t\tfont-size:22px !important;line-height:24px !important;font-weight:400 !important;text-transform:uppercase !important;\r\n\t\t\t\t}html:not([class*='ie']) .tdi_7 .td-module-container:hover .entry-thumb:before{\r\n                    opacity: 0;\r\n                }@media (min-width: 768px) {\r\n                    .tdi_7 .td-module-title a {\r\n                        transition: all 0.2s ease;\r\n                        -webkit-transition: all 0.2s ease;\r\n                    }\r\n                }\n\n\/* landscape *\/\n@media (min-width: 1019px) and (max-width: 1140px){\n.tdi_7 .td_module_wrap{\r\n\t\t\t\t\tpadding-bottom: 18px;\r\n\t\t\t\t\tmargin-bottom: 18px;\r\n\t\t\t\t\r\n\t\t\t\t\tpadding-bottom: 18px !important;\r\n\t\t\t\t\tmargin-bottom: 18px !important;\r\n\t\t\t\t}.tdi_7 .td-module-container:before{\r\n\t\t\t\t\tbottom: -18px;\r\n\t\t\t\t}.tdi_7 .td_module_wrap:nth-last-child(1){\r\n\t\t\t\t\tmargin-bottom: 0 !important;\r\n\t\t\t\t\tpadding-bottom: 0 !important;\r\n\t\t\t\t}.tdi_7 .td_module_wrap .td-module-container:before{\r\n\t\t\t\t\tdisplay: block !important;\r\n\t\t\t\t}.tdi_7 .td_module_wrap:nth-last-child(1) .td-module-container:before{\r\n\t\t\t\t\tdisplay: none !important;\r\n\t\t\t\t}.tdi_7 .td-module-title a{\r\n                    box-shadow: inset 0 0 0 0 #000;\r\n                }@media (min-width: 768px) {\r\n                    .tdi_7 .td-module-title a {\r\n                        transition: all 0.2s ease;\r\n                        -webkit-transition: all 0.2s ease;\r\n                    }\r\n                }\n}\n\n\/* portrait *\/\n@media (min-width: 768px) and (max-width: 1018px){\n.tdi_7 .td_module_wrap{\r\n\t\t\t\t\tpadding-bottom: 18px;\r\n\t\t\t\t\tmargin-bottom: 18px;\r\n\t\t\t\t\r\n\t\t\t\t\tpadding-bottom: 18px !important;\r\n\t\t\t\t\tmargin-bottom: 18px !important;\r\n\t\t\t\t}.tdi_7 .td-module-container:before{\r\n\t\t\t\t\tbottom: -18px;\r\n\t\t\t\t}.tdi_7 .td_module_wrap:nth-last-child(1){\r\n\t\t\t\t\tmargin-bottom: 0 !important;\r\n\t\t\t\t\tpadding-bottom: 0 !important;\r\n\t\t\t\t}.tdi_7 .td_module_wrap .td-module-container:before{\r\n\t\t\t\t\tdisplay: block !important;\r\n\t\t\t\t}.tdi_7 .td_module_wrap:nth-last-child(1) .td-module-container:before{\r\n\t\t\t\t\tdisplay: none !important;\r\n\t\t\t\t}.tdi_7 .td-module-title a{\r\n                    box-shadow: inset 0 0 0 0 #000;\r\n                }@media (min-width: 768px) {\r\n         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shadow\",\"shadow_m_shadow_size\":\"\",\"shadow_m_shadow_offset_horizontal\":\"\",\"shadow_m_shadow_offset_vertical\":\"\",\"shadow_m_shadow_spread\":\"\",\"shadow_m_shadow_color\":\"\",\"btn_bg_hover\":\"\",\"btn_txt\":\"\",\"btn_txt_hover\":\"\",\"btn_border\":\"\",\"btn_border_hover\":\"\",\"pag_text\":\"\",\"pag_h_text\":\"\",\"pag_bg\":\"\",\"pag_h_bg\":\"\",\"pag_border\":\"\",\"pag_h_border\":\"\",\"ajax_pagination\":\"\",\"ajax_pagination_next_prev_swipe\":\"\",\"ajax_pagination_infinite_stop\":\"\",\"css\":\"\",\"td_column_number\":3,\"header_color\":\"\",\"color_preset\":\"\",\"border_top\":\"\",\"class\":\"tdi_7\",\"tdc_css_class\":\"tdi_7\",\"tdc_css_class_style\":\"tdi_7_rand_style\"}';\nblock_tdi_7.td_column_number = \"3\";\nblock_tdi_7.block_type = \"td_flex_block_1\";\nblock_tdi_7.post_count = \"9\";\nblock_tdi_7.found_posts = \"9\";\nblock_tdi_7.header_color = \"\";\nblock_tdi_7.ajax_pagination_infinite_stop = \"\";\nblock_tdi_7.max_num_pages = \"1\";\ntdBlocksArray.push(block_tdi_7);\n<\/script><div class=\"td-block-title-wrap\"><\/div><div id=tdi_7 class=\"td_block_inner td-mc1-wrap\">\r\n        <div class=\"td_module_flex td_module_flex_1 td_module_wrap td-animation-stack td-meta-info-hide td-cpt-post\">\r\n            <div class=\"td-module-container td-category-pos-\">\r\n                                    <div class=\"td-image-container\">\r\n                                                <div class=\"td-module-thumb\"><a href=\"https:\/\/lgmdcab.org\/index.php\/2026\/09\/14\/understanding-gene-therapy\/\"  rel=\"bookmark\" class=\"td-image-wrap \" title=\"Understanding Gene Therapy\" ><span class=\"entry-thumb td-thumb-css\" data-type=\"css_image\" data-img-url=\"https:\/\/lgmdcab.org\/wp-content\/uploads\/2026\/09\/CoverLGMDCAB-696x423.png\"  ><\/span><\/a><\/div>                                                                    <\/div>\r\n                \r\n                <div class=\"td-module-meta-info\">\r\n                                        \r\n                    <h3 class=\"entry-title td-module-title\"><a href=\"https:\/\/lgmdcab.org\/index.php\/2026\/09\/14\/understanding-gene-therapy\/\"  rel=\"bookmark\" title=\"Understanding Gene Therapy\">Understanding Gene Therapy<\/a><\/h3>\r\n                    \r\n                                            <div class=\"td-editor-date\">\r\n                                                        \r\n                                                            <span class=\"td-author-date\">\r\n                                                                                                                                                                                                                    <\/span>\r\n                                                    <\/div>\r\n                    \r\n                    <div class=\"td-excerpt\">Gene therapy is becoming a more accessible treatment for LGMD. It is a treatment that addresses the cause of LGMD, with the potential to change the disease. This can raise many questions. Some are medical, some are practical, and some deeply personal. This educational brochure has been created to make gene therapy easier to understand and to offer clear, accessible information for people living with LGMD, their families, and everyone involved in their care.<\/div>\r\n                    \r\n                                        <div class=\"td-read-more\">\r\n                        <a href=\"https:\/\/lgmdcab.org\/index.php\/2026\/09\/14\/understanding-gene-therapy\/\" title=\"Read more\"  >Read more<\/a>\r\n                    <\/div>\r\n                                    <\/div>\r\n            <\/div>\r\n        <\/div>\r\n\r\n        \r\n        <div class=\"td_module_flex td_module_flex_1 td_module_wrap td-animation-stack td-meta-info-hide td-cpt-post\">\r\n            <div class=\"td-module-container td-category-pos-\">\r\n                                    <div class=\"td-image-container\">\r\n                                                <div class=\"td-module-thumb\"><a href=\"https:\/\/lgmdcab.org\/index.php\/2026\/09\/01\/filming-begins-for-new-gene-therapy-educational-video-series\/\"  rel=\"bookmark\" class=\"td-image-wrap \" title=\"Filming Begins for New Gene Therapy Educational Video Series\" ><span class=\"entry-thumb td-thumb-css\" data-type=\"css_image\" data-img-url=\"https:\/\/lgmdcab.org\/wp-content\/uploads\/2026\/09\/Kaya-LGMD-CAB-EduVideo-696x457.jpeg\"  ><\/span><\/a><\/div>                                                                    <\/div>\r\n                \r\n                <div class=\"td-module-meta-info\">\r\n                                        \r\n                    <h3 class=\"entry-title td-module-title\"><a href=\"https:\/\/lgmdcab.org\/index.php\/2026\/09\/01\/filming-begins-for-new-gene-therapy-educational-video-series\/\"  rel=\"bookmark\" title=\"Filming Begins for New Gene Therapy Educational Video Series\">Filming Begins for New Gene Therapy Educational Video Series<\/a><\/h3>\r\n                    \r\n                                            <div class=\"td-editor-date\">\r\n                                                        \r\n                                                            <span class=\"td-author-date\">\r\n                                                                                                                                                                                                                    <\/span>\r\n                                                    <\/div>\r\n                    \r\n                    <div class=\"td-excerpt\">Filming has now begun for a series of videos that will help explain key aspects of gene therapy from a patient perspective. The aim is to make complex scientific information more accessible for people living with Limb-Girdle Muscular Dystrophy (LGMD), their families, caregivers and the wider LGMD community.<\/div>\r\n                    \r\n                                        <div class=\"td-read-more\">\r\n                        <a href=\"https:\/\/lgmdcab.org\/index.php\/2026\/09\/01\/filming-begins-for-new-gene-therapy-educational-video-series\/\" title=\"Read more\"  >Read more<\/a>\r\n                    <\/div>\r\n                                    <\/div>\r\n            <\/div>\r\n        <\/div>\r\n\r\n        \r\n        <div class=\"td_module_flex td_module_flex_1 td_module_wrap td-animation-stack td-meta-info-hide td-cpt-post\">\r\n            <div class=\"td-module-container td-category-pos-\">\r\n                                    <div class=\"td-image-container\">\r\n                                                <div class=\"td-module-thumb\"><a href=\"https:\/\/lgmdcab.org\/index.php\/2026\/04\/03\/lgmd-cab-completes-data-collection-phase-of-cardiac-care-research\/\"  rel=\"bookmark\" class=\"td-image-wrap \" title=\"LGMD CAB Completes Data Collection Phase of Cardiac Care Research\" ><span class=\"entry-thumb td-thumb-css\" data-type=\"css_image\" data-img-url=\"https:\/\/lgmdcab.org\/wp-content\/uploads\/2026\/04\/Digitale-hartvorm-in-groene-lijnen-696x464.png\"  ><\/span><\/a><\/div>                                                                    <\/div>\r\n                \r\n                <div class=\"td-module-meta-info\">\r\n                                        \r\n                    <h3 class=\"entry-title td-module-title\"><a href=\"https:\/\/lgmdcab.org\/index.php\/2026\/04\/03\/lgmd-cab-completes-data-collection-phase-of-cardiac-care-research\/\"  rel=\"bookmark\" title=\"LGMD CAB Completes Data Collection Phase of Cardiac Care Research\">LGMD CAB Completes Data Collection Phase of Cardiac Care Research<\/a><\/h3>\r\n                    \r\n                                            <div class=\"td-editor-date\">\r\n                                                        \r\n                                                            <span class=\"td-author-date\">\r\n                                                                                                                                                                                                                    <\/span>\r\n                                                    <\/div>\r\n                    \r\n                    <div class=\"td-excerpt\">\nThe LGMD CAB is pleased to announce the successful completion of the data collection phase of our cardiac care research for people living with LGMD.\n\n\n\nThis marks an important milestone in our efforts to better understand the cardiac care experiences...<\/div>\r\n                    \r\n                                        <div class=\"td-read-more\">\r\n                        <a href=\"https:\/\/lgmdcab.org\/index.php\/2026\/04\/03\/lgmd-cab-completes-data-collection-phase-of-cardiac-care-research\/\" title=\"Read more\"  >Read more<\/a>\r\n                    <\/div>\r\n                                    <\/div>\r\n            <\/div>\r\n        <\/div>\r\n\r\n        \r\n        <div class=\"td_module_flex td_module_flex_1 td_module_wrap td-animation-stack td-meta-info-hide td-cpt-post\">\r\n            <div class=\"td-module-container td-category-pos-\">\r\n                                    <div class=\"td-image-container\">\r\n                                                <div class=\"td-module-thumb\"><a href=\"https:\/\/lgmdcab.org\/index.php\/2026\/04\/02\/lgmd-cab-proud-to-contribute-to-published-study-on-independent-community-advisory-boards-in-health-product-research\/\"  rel=\"bookmark\" class=\"td-image-wrap \" title=\"LGMD CAB Proud to Contribute to Published Study on Independent Community Advisory Boards in Health Product Research\" ><span class=\"entry-thumb td-thumb-css\" data-type=\"css_image\" data-img-url=\"https:\/\/lgmdcab.org\/wp-content\/uploads\/2026\/04\/LGMD-CAB-report-2-696x513.jpg\"  ><\/span><\/a><\/div>                                                                    <\/div>\r\n                \r\n                <div class=\"td-module-meta-info\">\r\n                                        \r\n                    <h3 class=\"entry-title td-module-title\"><a href=\"https:\/\/lgmdcab.org\/index.php\/2026\/04\/02\/lgmd-cab-proud-to-contribute-to-published-study-on-independent-community-advisory-boards-in-health-product-research\/\"  rel=\"bookmark\" title=\"LGMD CAB Proud to Contribute to Published Study on Independent Community Advisory Boards in Health Product Research\">LGMD CAB Proud to Contribute to Published Study on Independent Community Advisory Boards in Health Product Research<\/a><\/h3>\r\n                    \r\n                                            <div class=\"td-editor-date\">\r\n                                                        \r\n                                                            <span class=\"td-author-date\">\r\n                                                                                                                                                                                                                    <\/span>\r\n                                                    <\/div>\r\n                    \r\n                    <div class=\"td-excerpt\">The LGMD Community Advisory Board (LGMD CAB) is proud to have contributed to the newly published study, Evaluation of the methodology of independent Community Advisory Boards in health products research and development: a mixed-methods cross-sectional survey study.<\/div>\r\n                    \r\n                                        <div class=\"td-read-more\">\r\n                        <a href=\"https:\/\/lgmdcab.org\/index.php\/2026\/04\/02\/lgmd-cab-proud-to-contribute-to-published-study-on-independent-community-advisory-boards-in-health-product-research\/\" title=\"Read more\"  >Read more<\/a>\r\n                    <\/div>\r\n                                    <\/div>\r\n            <\/div>\r\n        <\/div>\r\n\r\n        \r\n        <div class=\"td_module_flex td_module_flex_1 td_module_wrap td-animation-stack td-meta-info-hide td-cpt-post\">\r\n            <div class=\"td-module-container td-category-pos-\">\r\n                                    <div class=\"td-image-container\">\r\n                                                <div class=\"td-module-thumb\"><a href=\"https:\/\/lgmdcab.org\/index.php\/2026\/02\/18\/19-2-celebrating-donavons-birthday-2\/\"  rel=\"bookmark\" class=\"td-image-wrap \" title=\"Remembering Donavon Through the Voices of the LGMD Community\" ><span class=\"entry-thumb td-thumb-css\" data-type=\"css_image\" data-img-url=\"https:\/\/lgmdcab.org\/wp-content\/uploads\/2026\/02\/Donavon-Kirsten-696x389.png\"  ><\/span><\/a><\/div>                                                                    <\/div>\r\n                \r\n                <div class=\"td-module-meta-info\">\r\n                                        \r\n                    <h3 class=\"entry-title td-module-title\"><a href=\"https:\/\/lgmdcab.org\/index.php\/2026\/02\/18\/19-2-celebrating-donavons-birthday-2\/\"  rel=\"bookmark\" title=\"Remembering Donavon Through the Voices of the LGMD Community\">Remembering Donavon Through the Voices of the LGMD Community<\/a><\/h3>\r\n                    \r\n                                            <div class=\"td-editor-date\">\r\n                                                        \r\n                                                            <span class=\"td-author-date\">\r\n                                                                                                                                                                                                                    <\/span>\r\n                                                    <\/div>\r\n                    \r\n                    <div class=\"td-excerpt\">\nToday, on Donavon Decker\u2019s birthday, we remember not only the person he was, but the strength, honesty and determination he brought to our community. Although Donavon passed away a year ago, his voice continues to resonate through his film\u00a0Unfinished...<\/div>\r\n                    \r\n                                        <div class=\"td-read-more\">\r\n                        <a href=\"https:\/\/lgmdcab.org\/index.php\/2026\/02\/18\/19-2-celebrating-donavons-birthday-2\/\" title=\"Read more\"  >Read more<\/a>\r\n                    <\/div>\r\n                                    <\/div>\r\n            <\/div>\r\n        <\/div>\r\n\r\n        \r\n        <div class=\"td_module_flex td_module_flex_1 td_module_wrap td-animation-stack td-meta-info-hide td-cpt-post\">\r\n            <div class=\"td-module-container td-category-pos-\">\r\n                                    <div class=\"td-image-container\">\r\n                                                <div class=\"td-module-thumb\"><a href=\"https:\/\/lgmdcab.org\/index.php\/2026\/01\/05\/lgmd-cardiac-care-survey-in-2026\/\"  rel=\"bookmark\" class=\"td-image-wrap \" title=\"LGMD Cardiac Care Survey in 2026\u00a0\" ><span class=\"entry-thumb td-thumb-css\" data-type=\"css_image\" data-img-url=\"https:\/\/lgmdcab.org\/wp-content\/uploads\/2026\/01\/LGMD_CAB_heartstudy-696x467.jpg\"  ><\/span><\/a><\/div>                                                                    <\/div>\r\n                \r\n                <div class=\"td-module-meta-info\">\r\n                                        \r\n                    <h3 class=\"entry-title td-module-title\"><a href=\"https:\/\/lgmdcab.org\/index.php\/2026\/01\/05\/lgmd-cardiac-care-survey-in-2026\/\"  rel=\"bookmark\" title=\"LGMD Cardiac Care Survey in 2026\u00a0\">LGMD Cardiac Care Survey in 2026\u00a0<\/a><\/h3>\r\n                    \r\n                                            <div class=\"td-editor-date\">\r\n                                                        \r\n                                                            <span class=\"td-author-date\">\r\n                                                                                                                                                                                                                    <\/span>\r\n                                                    <\/div>\r\n                    \r\n                    <div class=\"td-excerpt\">\nWe are launching an international patient survey to capture the lived experiences of up to 140 people across multiple LGMD subtypes. The aim is to identify patterns in access to care, treatment satisfaction, and daily quality of life, and...<\/div>\r\n                    \r\n                                        <div class=\"td-read-more\">\r\n                        <a href=\"https:\/\/lgmdcab.org\/index.php\/2026\/01\/05\/lgmd-cardiac-care-survey-in-2026\/\" title=\"Read more\"  >Read more<\/a>\r\n                    <\/div>\r\n                                    <\/div>\r\n            <\/div>\r\n        <\/div>\r\n\r\n        \r\n        <div class=\"td_module_flex td_module_flex_1 td_module_wrap td-animation-stack td-meta-info-hide td-cpt-post\">\r\n            <div class=\"td-module-container td-category-pos-\">\r\n                                    <div class=\"td-image-container\">\r\n                                                <div class=\"td-module-thumb\"><a href=\"https:\/\/lgmdcab.org\/index.php\/2025\/10\/09\/donavon-decker-a-global-voice-for-strength\/\"  rel=\"bookmark\" class=\"td-image-wrap \" title=\"Donavon Decker: A Global Voice for Strength\" ><span class=\"entry-thumb td-thumb-css\" data-type=\"css_image\" data-img-url=\"https:\/\/lgmdcab.org\/wp-content\/uploads\/2025\/10\/Donavon_DXanthopoulos_02c-696x464.jpg\"  ><\/span><\/a><\/div>                                                                    <\/div>\r\n                \r\n                <div class=\"td-module-meta-info\">\r\n                                        \r\n                    <h3 class=\"entry-title td-module-title\"><a href=\"https:\/\/lgmdcab.org\/index.php\/2025\/10\/09\/donavon-decker-a-global-voice-for-strength\/\"  rel=\"bookmark\" title=\"Donavon Decker: A Global Voice for Strength\">Donavon Decker: A Global Voice for Strength<\/a><\/h3>\r\n                    \r\n                                            <div class=\"td-editor-date\">\r\n                                                        \r\n                                                            <span class=\"td-author-date\">\r\n                                                                                                                                                                                                                    <\/span>\r\n                                                    <\/div>\r\n                    \r\n                    <div class=\"td-excerpt\">\nThis film shines light on the profound impact of LGMD2D in daily life and Donavon Decker his relentless mission to push the medical industry forward. In Search of Strength is an intimate and emotionally charged portrait of Donavon Decker,...<\/div>\r\n                    \r\n                                        <div class=\"td-read-more\">\r\n                        <a href=\"https:\/\/lgmdcab.org\/index.php\/2025\/10\/09\/donavon-decker-a-global-voice-for-strength\/\" title=\"Read more\"  >Read more<\/a>\r\n                    <\/div>\r\n                                    <\/div>\r\n            <\/div>\r\n        <\/div>\r\n\r\n        \r\n        <div class=\"td_module_flex td_module_flex_1 td_module_wrap td-animation-stack td-meta-info-hide td-cpt-post\">\r\n            <div class=\"td-module-container td-category-pos-\">\r\n                                    <div class=\"td-image-container\">\r\n                                                <div class=\"td-module-thumb\"><a href=\"https:\/\/lgmdcab.org\/index.php\/2025\/10\/07\/hello-world\/\"  rel=\"bookmark\" class=\"td-image-wrap \" title=\"Welcome to the LGMD Community Advisory Board\" ><span class=\"entry-thumb td-thumb-css\" data-type=\"css_image\" data-img-url=\"https:\/\/lgmdcab.org\/wp-content\/uploads\/2025\/10\/DXanthopoulos_CAB_LGMD2_036-696x413.jpg\"  ><\/span><\/a><\/div>                                                                    <\/div>\r\n                \r\n                <div class=\"td-module-meta-info\">\r\n                                        \r\n                    <h3 class=\"entry-title td-module-title\"><a href=\"https:\/\/lgmdcab.org\/index.php\/2025\/10\/07\/hello-world\/\"  rel=\"bookmark\" title=\"Welcome to the LGMD Community Advisory Board\">Welcome to the LGMD Community Advisory Board<\/a><\/h3>\r\n                    \r\n                                            <div class=\"td-editor-date\">\r\n                                                        \r\n                                                            <span class=\"td-author-date\">\r\n                                                                                                                                                                                                                    <\/span>\r\n                                                    <\/div>\r\n                    \r\n                    <div class=\"td-excerpt\">\nWe are proud to introduce the&nbsp;Limb Girdle Muscular Dystrophy Community Advisory Board (LGMD CAB)&nbsp;\u2014 an independent, global panel of experienced patient advocates working in partnership with industry, clinicians, and researchers.\n\n\n\nOur mission is simple: to ensure that the lived experience...<\/div>\r\n                    \r\n                                        <div class=\"td-read-more\">\r\n                        <a href=\"https:\/\/lgmdcab.org\/index.php\/2025\/10\/07\/hello-world\/\" title=\"Read more\"  >Read more<\/a>\r\n                    <\/div>\r\n                                    <\/div>\r\n            <\/div>\r\n        <\/div>\r\n\r\n        \r\n        <div class=\"td_module_flex td_module_flex_1 td_module_wrap td-animation-stack td-meta-info-hide td-cpt-post\">\r\n            <div class=\"td-module-container td-category-pos-\">\r\n                                    <div class=\"td-image-container\">\r\n                                                <div class=\"td-module-thumb\"><a href=\"https:\/\/lgmdcab.org\/index.php\/2024\/11\/20\/diagnostic-and-care-guidelines-workshop-for-lgmd-r3-6-sarcoglycanopathies\/\"  rel=\"bookmark\" class=\"td-image-wrap \" title=\"Workshop for LGMD R3\u20136\" ><span class=\"entry-thumb td-thumb-css\" data-type=\"css_image\" data-img-url=\"https:\/\/lgmdcab.org\/wp-content\/uploads\/2024\/11\/01e7b729-63b1-4908-98e8-ef4d226192ea.png\"  ><\/span><\/a><\/div>                                                                    <\/div>\r\n                \r\n                <div class=\"td-module-meta-info\">\r\n                                        \r\n                    <h3 class=\"entry-title td-module-title\"><a href=\"https:\/\/lgmdcab.org\/index.php\/2024\/11\/20\/diagnostic-and-care-guidelines-workshop-for-lgmd-r3-6-sarcoglycanopathies\/\"  rel=\"bookmark\" title=\"Workshop for LGMD R3\u20136\">Workshop for LGMD R3\u20136<\/a><\/h3>\r\n                    \r\n                                            <div class=\"td-editor-date\">\r\n                                                        \r\n                                                            <span class=\"td-author-date\">\r\n                                                                                                                                                                                                                    <\/span>\r\n                                                    <\/div>\r\n                    \r\n                    <div class=\"td-excerpt\">\nDiagnostic and Care Guidelines Workshop for LGMD R3\u20136 (Sarcoglycanopathies)\n\n\n\nIn November 2024, members of the LGMD Community Advisory Board (LGMD CAB) participated in an international workshop dedicated to developing new diagnostic and care guidelines for LGMD R3\u20136 (sarcoglycanopathies). This multi-day...<\/div>\r\n                    \r\n                                        <div class=\"td-read-more\">\r\n                        <a href=\"https:\/\/lgmdcab.org\/index.php\/2024\/11\/20\/diagnostic-and-care-guidelines-workshop-for-lgmd-r3-6-sarcoglycanopathies\/\" title=\"Read more\"  >Read more<\/a>\r\n                    <\/div>\r\n                                    <\/div>\r\n            <\/div>\r\n        <\/div>\r\n\r\n        <\/div><\/div><\/div><\/div><\/div><\/div><\/div><\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-25","page","type-page","status-publish"],"_links":{"self":[{"href":"https:\/\/lgmdcab.org\/index.php\/wp-json\/wp\/v2\/pages\/25","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/lgmdcab.org\/index.php\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/lgmdcab.org\/index.php\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/lgmdcab.org\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/lgmdcab.org\/index.php\/wp-json\/wp\/v2\/comments?post=25"}],"version-history":[{"count":15,"href":"https:\/\/lgmdcab.org\/index.php\/wp-json\/wp\/v2\/pages\/25\/revisions"}],"predecessor-version":[{"id":249,"href":"https:\/\/lgmdcab.org\/index.php\/wp-json\/wp\/v2\/pages\/25\/revisions\/249"}],"wp:attachment":[{"href":"https:\/\/lgmdcab.org\/index.php\/wp-json\/wp\/v2\/media?parent=25"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}