{"id":9,"date":"2025-10-09T20:39:32","date_gmt":"2025-10-09T20:39:32","guid":{"rendered":"https:\/\/lgmdcab.org\/?page_id=9"},"modified":"2025-10-12T22:07:58","modified_gmt":"2025-10-12T22:07:58","slug":"about-us","status":"publish","type":"page","link":"https:\/\/lgmdcab.org\/","title":{"rendered":"About Us"},"content":{"rendered":"<div id=\"tdi_1\" class=\"tdc-zone\"><div class=\"tdc_zone tdi_2  wpb_row td-pb-row\"  >\n<style scoped>\n\/* custom css - generated by TagDiv Composer *\/\n\n\/* custom css - generated by TagDiv Composer *\/\n.tdi_2{\r\n                    min-height: 0;\r\n                }\n<\/style><div id=\"tdi_3\" class=\"tdc-row\"><div class=\"vc_row tdi_4  wpb_row td-pb-row\" >\n<style scoped>\n\/* custom css - generated by TagDiv Composer *\/\n\n\/* custom css - generated by TagDiv Composer *\/\n.tdi_4,\r\n                .tdi_4 .tdc-columns{\r\n                    min-height: 0;\r\n                }.tdi_4,\r\n\t\t\t\t.tdi_4 .tdc-columns{\r\n\t\t\t\t    display: block;\r\n\t\t\t\t}.tdi_4 .tdc-columns{\r\n\t\t\t\t    width: 100%;\r\n\t\t\t\t}.tdi_4:before,\r\n\t\t\t\t.tdi_4:after{\r\n\t\t\t\t    display: table;\r\n\t\t\t\t}\n<\/style><div class=\"vc_column tdi_6  wpb_column vc_column_container tdc-column td-pb-span8\">\n<style scoped>\n\/* custom css - generated by TagDiv Composer *\/\n\n\/* custom css - generated by TagDiv Composer *\/\n.tdi_6{\r\n                    vertical-align: baseline;\r\n                }.tdi_6 > .wpb_wrapper,\r\n\t\t\t\t.tdi_6 > .wpb_wrapper > .tdc-elements{\r\n\t\t\t\t    display: block;\r\n\t\t\t\t}.tdi_6 > .wpb_wrapper > .tdc-elements{\r\n\t\t\t\t    width: 100%;\r\n\t\t\t\t}.tdi_6 > .wpb_wrapper > .vc_row_inner{\r\n\t\t\t\t    width: auto;\r\n\t\t\t\t}.tdi_6 > .wpb_wrapper{\r\n\t\t\t\t    width: auto;\r\n\t\t\t\t    height: auto;\r\n\t\t\t\t}\n<\/style><div class=\"wpb_wrapper\" ><h1 class=\"td_block_wrap tdm_block_column_title_simplified_2 tdi_7 td-pb-border-top td_block_template_2\"  data-td-block-uid=\"tdi_7\" >\n<style>\n\/* custom css - generated by TagDiv Composer *\/\n.tdm_block_column_title_simplified_2{\r\n                    display: flex;\r\n\t\t\t\t\tflex-direction: column;\r\n\t\t\t\t\tmargin: 0;\r\n\t\t\t\t\ttransform: translateZ(0);\r\n\t\t\t\t\tfont-size: 28px;\r\n                    line-height: 1.3;\r\n                    font-weight: 400;\r\n                    color: #111;\r\n\t\t\t\t}.tdm_block_column_title_simplified_2 > .td-element-style{\r\n\t\t\t\t\tz-index: -1;\r\n\t\t\t\t}.tdm_block_column_title_simplified_2 .tdm-title-s-text{\r\n                    text-align: left;\r\n\t\t\t\t}.tdi_7{\r\n\t\t\t\t\tbackground-color: #53575a;\r\n\t\t\t\t\t-webkit-background-clip: text;\r\n\t\t\t\t\t-webkit-text-fill-color: transparent;\r\n\t\t\t\t\r\n\t\t\t\t\tfont-family:EB Garamond !important;font-size:20px !important;text-transform:uppercase !important;\r\n\t\t\t\t}html[class*='ie'] .tdi_7{\r\n\t\t\t\t    background: none;\r\n\t\t\t\t\tcolor: #53575a;\r\n\t\t\t\t}\n<\/style><span class=\"tdm-title-s-text\">Limb Girdle Muscular Dystrophy<\/span><\/h1><h3 class=\"td_block_wrap tdm_block_column_title_simplified_2 tdi_8 td-pb-border-top td_block_template_2\"  data-td-block-uid=\"tdi_8\" >\n<style>\n\/* custom css - generated by TagDiv Composer *\/\n.tdi_8{\r\n\t\t\t\t\tbackground-color: #53575a;\r\n\t\t\t\t\t-webkit-background-clip: text;\r\n\t\t\t\t\t-webkit-text-fill-color: transparent;\r\n\t\t\t\t\r\n\t\t\t\t\tfont-family:EB Garamond !important;text-transform:uppercase !important;\r\n\t\t\t\t}html[class*='ie'] .tdi_8{\r\n\t\t\t\t    background: none;\r\n\t\t\t\t\tcolor: #53575a;\r\n\t\t\t\t}\n<\/style><span class=\"tdm-title-s-text\"> Community Advisory Board<\/span><\/h3><div class=\"wpb_wrapper td_block_empty_space td_block_wrap vc_empty_space tdi_10 \"  style=\"height: 40px\"><\/div><div class=\"td_block_wrap td_block_text_with_title tdi_11 tagdiv-type td-pb-border-top td_block_template_2\"  data-td-block-uid=\"tdi_11\" >\n<style>\n\/* custom css - generated by TagDiv Composer *\/\n.td_block_text_with_title{\r\n                  margin-bottom: 44px;\r\n                  -webkit-transform: translateZ(0);\r\n                  transform: translateZ(0);\r\n                }.td_block_text_with_title p:last-child{\r\n                  margin-bottom: 0;\r\n                }.tdi_11{\r\n\t\t\t        color: #53575a;\r\n\t\t        }\n<\/style><div class=\"td-block-title-wrap\"><\/div><div class=\"td_mod_wrap td-fix-index\"><p><b>Who We Are<\/b><br \/>The\u00a0Limb Girdle Muscular Dystrophy Community Advisory Board (LGMD CAB)\u00a0is an independent, international group of experienced patient advocates working alongside industry, researchers, and clinicians. We ensure that the lived experience of people with LGMD is represented in every stage of therapy and trial development \u2014 making research more relevant, feasible, and impactful.<\/p>\n<p><b>Our Mission<\/b><br \/>We bridge the gap between science and real life. Our goal is to help shape clinical studies and treatment strategies that truly reflect the needs and priorities of those living with LGMD. By sharing practical insight and lived experience, we support the creation of therapies that are both effective and meaningful.<\/p>\n<p><b>What We Do<\/b><br \/>The LGMD CAB provides:<br \/>\u2022\u00a0Study Design Feedback\u00a0\u2013 improving feasibility and participant experience.<br \/>\u2022\u00a0Community Insights\u00a0\u2013 translating patient perspectives into actionable guidance.<br \/>\u2022\u00a0Ethical &#038; Practical Support\u00a0\u2013 ensuring transparent and inclusive engagement.<br \/>\u2022\u00a0Long-Term Collaboration\u00a0\u2013 building trusted partnerships across sectors.<br \/>\u2022 Our input helps partners anticipate challenges, improve recruitment and deliver stronger outcomes for all involved.<\/p>\n<p><b>Global Reach<br \/><\/b>Our members represent multiple regions and healthcare systems worldwide, ensuring a balanced, international perspective in every collaboration.<\/p>\n<p><b>Our Background<br \/><\/b>The LGMD CAB was established independed and has now the support of EURORDIS-Rare Diseases Europe and TREAT-NMD, as part of a global initiative to strengthen collaboration between patient communities and research stakeholders. We operate independently, following recognised standards of transparency, ethics, and engagement to bring authentic patient perspectives into LGMD research and development.<\/p>\n<\/div><\/div><\/div><\/div><div class=\"vc_column tdi_13  wpb_column vc_column_container tdc-column td-pb-span4\">\n<style scoped>\n\/* custom css - generated by TagDiv Composer *\/\n\n\/* custom css - generated by TagDiv Composer *\/\n.tdi_13{\r\n                    vertical-align: baseline;\r\n                }.tdi_13 > .wpb_wrapper,\r\n\t\t\t\t.tdi_13 > .wpb_wrapper > .tdc-elements{\r\n\t\t\t\t    display: block;\r\n\t\t\t\t}.tdi_13 > .wpb_wrapper > .tdc-elements{\r\n\t\t\t\t    width: 100%;\r\n\t\t\t\t}.tdi_13 > .wpb_wrapper > .vc_row_inner{\r\n\t\t\t\t    width: auto;\r\n\t\t\t\t}.tdi_13 > .wpb_wrapper{\r\n\t\t\t\t    width: auto;\r\n\t\t\t\t    height: auto;\r\n\t\t\t\t}\n<\/style><div class=\"wpb_wrapper\" ><div class=\"td_block_wrap td_block_text_with_title tdi_14 tagdiv-type td-pb-border-top td_block_template_2\"  data-td-block-uid=\"tdi_14\" >\n<style>\n\/* custom css - generated by TagDiv Composer *\/\n.tdi_14{\r\n\t\t\t        color: #53575a;\r\n\t\t        }\n<\/style><div class=\"td-block-title-wrap\"><\/div><div class=\"td_mod_wrap td-fix-index\"><p><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-70 size-full aligncenter\" src=\"https:\/\/lgmdcab.org\/wp-content\/uploads\/2025\/10\/unnamed.jpg\" alt=\"\" width=\"1024\" height=\"869\" srcset=\"https:\/\/lgmdcab.org\/wp-content\/uploads\/2025\/10\/unnamed.jpg 1024w, https:\/\/lgmdcab.org\/wp-content\/uploads\/2025\/10\/unnamed-300x255.jpg 300w, https:\/\/lgmdcab.org\/wp-content\/uploads\/2025\/10\/unnamed-768x652.jpg 768w, https:\/\/lgmdcab.org\/wp-content\/uploads\/2025\/10\/unnamed-495x420.jpg 495w, https:\/\/lgmdcab.org\/wp-content\/uploads\/2025\/10\/unnamed-150x127.jpg 150w, https:\/\/lgmdcab.org\/wp-content\/uploads\/2025\/10\/unnamed-696x591.jpg 696w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><\/p>\n<p><strong data-start=\"0\" data-end=\"22\" data-is-only-node=\"\">Global Perspective<\/strong><br data-start=\"22\" data-end=\"25\" \/>With CAB members located around the world, we bring together diverse expertise and experiences. This global network allows us to provide a broader perspective \u2014 ensuring that every insight reflects not just one region, but the collective voice of our international community.<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-71  aligncenter\" src=\"https:\/\/lgmdcab.org\/wp-content\/uploads\/2025\/10\/CAB-members-1024x800.jpg\" alt=\"\" width=\"423\" height=\"331\" srcset=\"https:\/\/lgmdcab.org\/wp-content\/uploads\/2025\/10\/CAB-members-1024x800.jpg 1024w, https:\/\/lgmdcab.org\/wp-content\/uploads\/2025\/10\/CAB-members-300x234.jpg 300w, https:\/\/lgmdcab.org\/wp-content\/uploads\/2025\/10\/CAB-members-768x600.jpg 768w, https:\/\/lgmdcab.org\/wp-content\/uploads\/2025\/10\/CAB-members-1536x1200.jpg 1536w, https:\/\/lgmdcab.org\/wp-content\/uploads\/2025\/10\/CAB-members-2048x1601.jpg 2048w, https:\/\/lgmdcab.org\/wp-content\/uploads\/2025\/10\/CAB-members-537x420.jpg 537w, https:\/\/lgmdcab.org\/wp-content\/uploads\/2025\/10\/CAB-members-150x117.jpg 150w, https:\/\/lgmdcab.org\/wp-content\/uploads\/2025\/10\/CAB-members-696x544.jpg 696w, https:\/\/lgmdcab.org\/wp-content\/uploads\/2025\/10\/CAB-members-1068x835.jpg 1068w, https:\/\/lgmdcab.org\/wp-content\/uploads\/2025\/10\/CAB-members-1920x1501.jpg 1920w\" sizes=\"auto, (max-width: 423px) 100vw, 423px\" \/><br \/><b>How We Collaborate<br \/><\/b>The\u00a0LGMD CAB\u00a0partners with organisations developing therapies and research in Limb Girdle Muscular Dystrophy. We provide independent, experience-based feedback through advisory meetings, workshops, and document reviews.<br data-start=\"411\" data-end=\"414\" \/><br \/>Our goal is to help make studies more relevant, feasible, and patient-centred. By engaging with us early, partners gain valuable insight that improves trial design, strengthens community trust, and enhances the overall quality and impact of their research.<\/p>\n<p style=\"text-align: center;\">\u2022\u2022\u2022<\/p>\n<p>\u00a0<\/p>\n<\/div><\/div><\/div><\/div><\/div><\/div><\/div><\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-9","page","type-page","status-publish"],"_links":{"self":[{"href":"https:\/\/lgmdcab.org\/index.php\/wp-json\/wp\/v2\/pages\/9","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/lgmdcab.org\/index.php\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/lgmdcab.org\/index.php\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/lgmdcab.org\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/lgmdcab.org\/index.php\/wp-json\/wp\/v2\/comments?post=9"}],"version-history":[{"count":18,"href":"https:\/\/lgmdcab.org\/index.php\/wp-json\/wp\/v2\/pages\/9\/revisions"}],"predecessor-version":[{"id":149,"href":"https:\/\/lgmdcab.org\/index.php\/wp-json\/wp\/v2\/pages\/9\/revisions\/149"}],"wp:attachment":[{"href":"https:\/\/lgmdcab.org\/index.php\/wp-json\/wp\/v2\/media?parent=9"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}